The VM Franciscan ALS Clinic at St. Joseph Medical Center in Tacoma, Washington provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
May is ALS Awareness Month, an opportunity for the ALS community to work together to help educate people about this devastating disease and shine a spotlight on the impact ALS has on the families it touches. To kick off the month of May, we’re highlighting eight easy ways you can help raise awareness this month and beyond.
Mike will never forget receiving a phone call telling him that his best friend, Matt, had been diagnosed with ALS. The first event Mike attended for The ALS Association was a golf event in Janesville with Matt. That one event has now become years of walks and third-party events supporting The ALS Association Wisconsin Chapter.
Expanded Access, or “compassionate use” as it is often referred, allows patients with a terminal diagnosis early access to new therapeutics that show promise – even if the patient is not involved in the ongoing clinical trial – or if the medication has not yet been approved by the FDA.
Results from this study showed plasma phosphorylated tau (p-tau181), was higher in patients with amyotrophic lateral sclerosis than in patients without ALS.
In patients with ALS, plasma p-tau181 was associated with lower motor neuron (LMN) signs in cervical, thoracic, and lumbosacral regions, and was associated with neuron loss in the spinal cord but not the motor cortex.
On March 30, an FDA advisory panel voted 6 to 4 against recommending approval of what might be the most effective treatment to date for amyotrophic lateral sclerosis. The panel’s decision is not binding, and the FDA could disregard its recommendation when it issues its final decision on the treatment, called AMX0035, in June
For more than two years since my diagnosis, I willed myself to stay focused on the present. I knew this disease would kill me. But I fixed my eyes on the ground in front of me and refused to lift my gaze to the black clouds.
Hundreds of people raised money Saturday to find a cure for ALS, a deadly disorder that affects the nerves and muscles, eventually taking away someone’s ability to walk, talk and even breathe.