Making ALS a livable disease is possible, but it will take all of us to make that happen. On behalf of my family and my frontline faction, I hope you will join me.
Cole Thompson and Lamar Woody have been friends since the seventh grade, although Cole readily admits he had lost touch with his friend after college. Cole moved away from Auburn, Alabama, and life took him and Lamar in different directions. Then one day Cole saw a GoFundMe page someone had created for Lamar and his family after Lamar was diagnosed with ALS. “From there, Lamar and I started chatting again on Facebook, and rekindled our friendship,” Cole says.
The ALS Association recently filed comments with the National Institute of Health (NIH) to provide the National Advisory Neurological Disorders and Stroke Council and their Council Working Group with constructive feedback on the development of the NINDS 2022 Draft ALS Strategic Plan.
Across our mission, we saw amazing progress in the fight against ALS in 2022. When we come together as one team with one mission, we have an opportunity to change the world.
In honor of MLB Lou Gehrig Day on June 2, we'll honor Lou's legend with the MLB at our Milwaukee Home Field on Friday, June 9, 2023, with our traditional Tailgate!
The ALS Association’s nationwide network of local care teams work tirelessly with families to provide education, support and resources to help. One of those care team members is Melissa Enfinger, director of care services in Alabama, who works very closely with the Woody family in Auburn.
The United States Department of Veterans Affairs has made RELYVRIO available for the treatment of ALS for veterans who are living with the disease who receive care at VA clinics or ALS specialists, becoming one of the first health care payers or insurers to provide access to the drug.