The fight for the Genetic Testing Protection Act in Maryland continued Thursday with ALS Association leaders pressing the state’s House of Delegates to advance the policy. The bill would prohibit companies that offer life insurance and disability insurance in that state from using the results of genetic testing to deny coverage or engage in price discrimination. Similar bills have been proposed in New York, Illinois and Tennessee.
Medicare is in the final stage of adding power seat elevation systems in power wheelchairs as a new benefit for disabled individuals including people living with ALS. The Centers for Medicare and Medicaid Services recently released a proposal to deem the equipment medically necessary to preform weight-bearing transfers – a huge win for ALS advocates who have been fighting for years for coverage.
Jared Salomon lost his father to ALS in October of 2020 when he was just 29 and planning his engagement to his now beautiful wife, Maryn. While his father was not around to physically attend his wedding, he was there in spirit and left an amazing gift for his family and friends; a memory that will live on and be cherished forever.