The Maurer-Heinsen Home Access Program is a compassionate and practical initiative dedicated to enhancing the lives of individuals living with ALS. This program was generously funded by the Tim Maurer and Petra Heinsen family and is aptly named in their honor.
The Maurer-Heinsen Home Access Program is a compassionate and practical initiative dedicated to enhancing the lives of individuals living with ALS. This program was generously funded by the Tim Maurer and Petra Heinsen family and is aptly named in their honor.
The ALS Care Clinic at Crestwood Medical Center in Huntsville, Alabama provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
These 2-year awards with a maximum budget of $500,000 seek to support the development and/or testing of interventions intended to improve quality of life; make ALS care safer, of higher quality, more accessible, more equitable, and more affordable; reduce complications; and enhance service delivery at the point of care.
Today, we are happy to be joined by ALS clinician scientist Dr. Peter Creigh from the University of Rochester in Rochester, N.Y., the recipient of the 2018 Clinician Research Training Fellowship in ALS Research. The fellowship is given by The ALS Association, in partnership with the American Academy of Neurology (AAN).
The ALS Association’s nationwide network of local care teams work tirelessly with families to provide education, support and resources to help. One of those care team members is Melissa Enfinger, director of care services in Alabama, who works very closely with the Woody family in Auburn.
The impact of ALS on breathing is likely one of the most daunting aspects of the disease journey and one for which you and your family can and should prepare for early on. There are many different options and interventions to consider, and education and proactive planning can help to ease the stress for everyone involved.
The Yale Medicine Center for Musculoskeletal Care in Greenwich, Connecticut provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
The ALS Association clinic network is focused on high-quality standards and multidisciplinary care. One of those clinics recently forged a particularly innovative partnership for collaborative care.