Kevin Gosnell, founder of ALS ONE, passed away on Monday because of complications from the disease. Gosnell was diagnosed with ALS in spring 2015 and immediately put his business acumen and CEO leadership skills to work, convening the best minds in the ALS community. He founded ALS ONE in January 2016 and brought together leading neurology experts and care specialists from Massachusetts in partnership to leverage their institutions’ strengths to expedite progress toward finding a treatment for ALS within the next four years.
ALS Nexus will feature leading experts in the ALS community, including researchers, healthcare providers, advocates, and people living with ALS. Each brings unique perspectives and invaluable expertise to our discussions. Join us as we share insights, ignite hope, and change the future of ALS.
As you may have heard, we are going through a period of transition and I just want to take a moment to explain what is happening. Most of you want to know that we will continue to provide high-quality care services, state and national advocacy, and global ALS research. Let me reassure you -- we will. In fact, we will now better be able to do those things -- for everyone, everywhere.
We depend on thousands of volunteers to support our many programs, including care services, advocacy and fundraising activities. Please contact us to learn more about how you can help.
We’d like to extend a huge thank you to the more than 570 ALS Advocates who participated in our 2018 National ALS Advocacy Conference in Washington, D.C., this week. Nearly every state in the country was represented and nearly half of the participants were attending for the first time.
Navigating the world of health care, insurance, and especially Medicare, can be very complicated and overwhelming. Making the right decisions when it comes to healthcare and understanding all of your options is critical for everyone, but even more so for people living with ALS.
Join us to celebrate the ALS Association and Lou Gehrig Day at Petco Park! We will be cheering on our very own San Diego Padres as they take on the Miami Marlins!