From the latest updates on ALS research and advocacy to information about caring for people living with ALS and stories from around the country, the Association’s blog covered it all. Here is a quick look at the top 10 features our readers enjoyed most.
The ALS Association Massachusetts and Northern New England Chapters present their Fall Symposium for Mobility and Homecare in ALS. Join us Wednesday, September 21, 2022 at the Morse Institute Library in Natick, MA for an educational day featuring prominent guest speakers.
The American Academy of Neurology ALS quality measures provide guidance and recommendations to health care providers, to ensure the most current information is available to provide the highest standard of care for individuals living with ALS. AAN has published draft updates to the ALS Quality Measurement Set and is now accepting public comments to help inform the final updates.
If you would like more information about The ALS Association serving Northern Ohio and the services we provide, please use the contact information below.
Historic changes in telehealth were made in response to COVID-19 that marked a big step forward in the use of digital technology to deliver health care. We need Congress to pass legislation to ensure expanded use of this vital health care tool is permanent. Send a letter to your members of Congress today urging them to support permanent access to telehealth.
The ALS Association joins the ALS community in mourning the loss of the legendary Hollywood publicist, Nanci Ryder. Nanci was diagnosed with ALS in 2014 and worked tirelessly through her journey spreading awareness of the disease and raising necessary funds for patient care and research.
While my dad was clearly saddened by his diagnosis and the inevitable loss of pride and independence, he tried his best to not let it show. He accepted more help than I had ever seen him want or ask for in his life. He learned how to live with a feeding tube, how to talk to doctors, how to apply for VA assistance and how to alter his financial planning for his new reality.
Carianne Meystrik has been living with ALS for 22 years – all while raising 4 children. In honor of Mother’s Day, we reached out to Carianne to check in on her ALS journey and her family, and to get her reflections on the impact ALS has had on motherhood.
The ALS Association prepared the Patient Bill of Rights to inform people living with ALS about their rights related to health care and health plan insurance coverage.