We had the pleasure of joining ALS scientists, clinicians, health care professionals, industry and advocacy partners, and, most importantly, people with ALS and their families at the annual events hosted by the International Alliance of ALS/MND Associations and the MND Association last month. It’s always a great opportunity to come together and learn from each other.
From the latest updates on ALS research and advocacy to information about caring for people living with ALS and inspiring stories from around the country, The ALS Association’s blog covered it all in 2022. Here is a quick look at the top ten posts our readers enjoyed most.
Our family’s journey with ALS was no doubt the saddest and hardest thing we ever encountered. But we managed to stay strong through it, and the entire experience brought us all even closer together. In the end, it became the most special and magical journey our family ever had together.
Hugh Hoffman was a Cincinnati native who passed away in March 2023 at the age of 91. When he was 11, Hugh lost his father, Herbert, to ALS, which is still a fatal disease without a cure. Hugh wanted to ensure that families in the future will not have to lose their loved ones to ALS.
Clinical trials are the most reliable – and ultimately the fastest – way to translate promising laboratory science into new and better ways to treat and care for people living with ALS. Therefore, the Association is working to significantly increase the number of high-quality ALS clinical trials as part of its strategic priority of finding new treatments and cures.
Research has shown that about two out of three of people with familial ALS and about one out of 10 people with sporadic ALS have a mutation (or change) in at least one of the more than 40 genes linked to the disease.