Today, more than 230 organizations sent a letter to all 50 state governors urging them to maintain and expand licensure flexibilities enacted at the start of the pandemic for the duration of the federal public health emergency, to better address patient needs during the ongoing pandemic.
There are currently six drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS and its symptoms: Qalsody, Radicava, Rilutek, Tiglutik, Exservan and Nuedexta. Please consult your doctor or health care professional about which ones may be right for you.
After Terry Peterson was diagnosed with ALS in 2019, his family decided to preserve the memories of their time together by documenting their journey in a video.
Kristina met Lamar Woody in high school, although it wasn’t until college when they really found their true connection. Lamar loves to tell everyone Kristina was the prettiest girl in school. Little did she know then she would not only become his wife and mother of their beautiful daughter, Natalie, but she would also become his ALS caregiver.
We are deeply sorry to share that Pat Quinn passed away today. Pat was co-founder of the ALS Ice Bucket Challenge and an inspiration to millions of people around the world.
Fundraising through the Walk to Defeat ALS drives bold and urgent innovation as we march together toward a treatment that makes ALS livable for everyone, everywhere – until we find a cure.