Connecting ALS recently sat down with Dr. Ericka Greene, Director of the Neuromuscular Clinic Houston Methodist Stanley H. Appel Department of Neurology to learn more about her personal experience working in ALS research and growing up in the STEM field to understand this trend from her perspective.
Diagnosed with ALS in March 2022 at the age of 33, Brooke Eby is using her innate sense of humor and positive outlook on life to help raise awareness and funding for ALS research.
I have been very fortunate and extremely unlucky in my life. I have bulbar-onset ALS. Of course, living with this “new normal” is challenging. But my previous experience with grief has informed my attitude now as well, and I try to live each day as best I can, in the most positive way possible.
We recently caught up with Lindsay Litterini, volunteer and board member for The ALS Association Western Pennsylvania Chapter, to learn more about her personal connection to ALS and her passion to join the fight against the disease.
Long-time natives of Colorado, Ellen and Lorenzo enjoyed an active busy lifestyle. Until ALS entered the picture, their plans for living a long and full life were all they dreamt about.
Kayla met Lamar Woody back in 2017 at the music store where he taught voice and piano lessons. As her very first vocal coach, Lamar will always have a special place in her heart. He not only taught her how to sing and use her voice, he taught her about ALS.
Throughout September we have highlighted some of this year’s scholarship recipients, sharing their personal stories about the impact ALS has had on their lives. We recently talked with Elita Schmidt to learn a little more about her connection to ALS, what receiving the scholarship means to her, and her future plans in healthcare.
ALS Focus™ is a survey program developed by and for people living with ALS and their caregivers. Through this program, we carry out scientifically rigorous research to learn as much as possible about individual experiences throughout the disease journey so the entire ALS community can benefit.