The 2022 Boston Walk to Defeat ALS, an annual fundraising event hosted by The ALS Association Massachusetts Chapter, will be held at UMass Boston on Sunday, October 16, 2022.
We recently talked with Ally Halverson, one of this year’s award recipients, to learn a little more about her personal connection to ALS, what receiving the scholarship means to her, and what her future plans are in healthcare.
ALS doesn’t care where a person lives, and a person with ALS in Florence, Italy is as much in need of reliable care and resources as someone in Florence, South Carolina. At the International Alliance of ALS/MND Association meeting in late 2022, proud “Mapper” members Amanda Stanko, senior solution engineer at Esri, and Pat (who joined remotely) shared how they are taking their clinic mapping tool internationally to provide the resource for people with ALS around the world.
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
If the drug is designed to treat a life-threatening illness, and if patients have no other options, the FDA might allow the pharmaceutical company to give patients early access to the drug outside of the clinical trial.
The ALS Center at Mount Sinai Downtown Union Square in New York, New York provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
The story of Steven’s Stompers begins with Steven Davis. Steven is a lifelong resident of Bladen County, N.C., an avid outdoorsman, a pipe fitter by trade, and an outstanding athlete. He began noticing symptoms in February 2012 and was diagnosed with ALS by a neurologist on April 30, 2012, at age 34.
After over a year in the making, The ALS Association in partnership with Prize4Life awarded the ALS Assistive Technology prize in Dublin during the ALS/MND International Alliance Meeting. We are thrilled to award one of the top prizes to Dexter Ang and David Cipoletta, two young entrepreneurs that founded Pison Technology based out of Massachusetts. They blew the judges away with their easy-to-use, self-contained communication system based on muscle EMG signals.
I like to think of our life as a book with many chapters with beginnings and endings. Jim’s story begins when he was born in a small town in Pennsylvania. He had two brothers and a sister growing up under the watchful eyes of their parents. Upon graduation from high school, Jim began in the banking business. He started as a teller and worked his way up to being an auditor. He was also active in his church. Along the way, Jim made very many good friends.