Multidisciplinary care has been proven to extend life, helping people living with ALS maintain independence longer and enjoy improved quality of life when provided with options for symptom management, assistive technology, adaptive equipment, education, care services and emotional support.
Families living with ALS are faced with a whole host of everyday challenges that can become a burden over time. The ALS Association created the Care Connection program to provide support to meet families’ needs to ultimately alleviate stress. Learn more about this extraordinary program and all the help it delivers.
ALS treatment and care is changing at a pace never seen before. To maximize the benefit of these advances, we are striving to optimize existing therapies, reduce complications and ensure the best standard of care is available to everyone, everywhere through our Quality of Care Research Awards.
For people with ALS, an occupational therapist (or OT) is there to help them maintain their independence for as long as possible as well as to find ways to maintain their quality of life. April is Occupational Therapy Month, so what better time to explore the many, and varied, ways an OT can make a difference.
Shannon Sullivan, Care Services Manager at The ALS Association Massachusetts Chapter, pens an update for the ALS community within the Commonwealth concerning current offerings and upcoming resources.
I was fortunate to see an early screening and I can say that “Gleason” is raw, honest, and uncompromising. It’s not just about the physical toll that this horrible disease takes on a person, though there is certainly plenty of that. It also shows the emotional toll the disease takes on everyone, especially the person living with ALS and his or her immediate family members.
Dr. Tawfiq Al-Lahham is a neurologist with a subspeciality in neuromuscular medicine. We discuss with Dr. Al-Lahham how expanding multidisciplinary care is helping to make ALS a livable disease for everyone, everywhere until a cure is found.