For many children and young adults in families with ALS, this is a common refrain; they feel alone and isolated from their peers, especially if they are involved in caring for their loved ones. These young caregivers often help with care tasks, yet have little training or guidance in how to do the specific tasks.
We met on a Sierra Club hike in the Columbia Gorge in May, 1984. He was cute and funny, and he loved hiking. He would have hiked every day if he could have.
His love of the outdoors grew through Boy Scouts, but he also learned the Scout Law, and took it to heart: trustworthy, loyal, helpful, friendly, courteous, kind, obedient, cheerful, thrifty, brave, clean, and reverent. Steve was all of these (well, okay--maybe not so thrifty.)
The U.S. Food and Drug Administration awarded $3.7 million to three ALS research projects as part of the implementation of the Accelerating Access to Critical Therapies for Amyotrophic Lateral Sclerosis Act (ACT for ALS).
A charitable gift annuity is a simple agreement between you and The ALS Association. In exchange for a gift of cash or appreciated assets, you receive fixed payments for life.
On May 25, 2021, representatives from the FDA were on hand to hear from the ALS community on its urgent need for expedited access to experimental therapies.
You can help spread the word about the National ALS Registry. This nationwide research program will help researchers learn who gets ALS and why, and help advance the search for the cause, new treatments and a cure. Learn more.
A key component to making ALS a livable disease is multidisciplinary care. Studies have shown this specialized ALS care can extend survival and improve patients’ quality of life by providing coordinated interprofessional care that seeks to address the complex needs of people living with the disease.
Every two years, hundreds of ALS health care professionals come together to discuss new trends, share best practices and guidelines, exchange ideas and successes, and talk about challenges and potential solutions. To capture the collaborative power of the 2018 event in Fort Worth, Texas – our largest-ever Clinical Conference, with more than 500 attendees – we put together a short video highlight reel.
The Legacy Society was created to recognize those special individuals who have included The ALS Association in their long-term plans through a bequest or living trust, life-income gift, beneficiary designation, or other financial planning arrangement.
As a donor under age 60 still in high-earning years and saving for retirement you can secure both current tax deductions and an additional source of retirement cash flow.