Evy Reviers serves as the CEO of ALS Liga, our sister organization in Belgium and is a champion in ALS patient advocacy and care. She and her organization stepped up to partner with Dr. Desain and his team that develops NoiseTag brain computer interface (BCI), who won the ALS Assistive Technology Challenge in Dublin this past December. Through this collaboration, patients in Belgium will be able to try out the NoiseTag BCI to optimize its function and usability, thereby making it the best product possible.
Through a Community Partner Event, you can raise critical funds for The ALS Association Northern Ohio Chapter by putting together your own special event to help in our fight to cure and treat ALS.
Everyone reacts differently to receiving an ALS diagnosis. No matter your reaction, at some point, you’ll be ready to begin making decisions and planning for the future. Learn more.
A diagnosis of ALS is life-changing. The ALS Association recommends that every person diagnosed with the disease seek a second opinion. The only way you can begin to accept an ALS diagnosis is to be certain it’s correct and that conditions that look like or mimic ALS are considered and excluded.
Occupational therapists are key members of the clinic team for individuals living with ALS. As ALS progresses, most people gradually lose their ability to use their hands and their arms as their muscles weaken. Occupational therapists help to provide expertise and creativity to help patients better manage daily activities for as long as possible.
People living with ALS eventually lose the ability to speak. That means that preserving channels of communication is an important component of enhancing quality of life. The ALS Association - DC/MD/VA Chapter took this to heart when they initiated The Esther Lerner Brenner ALS Assistive Technology Lab in Maryland, which is designed to help people living with ALS communicate effectively for as long as possible.
Lindy Anne Lund passed away last year from ALS. She is the mother of Olympic gold medalist, Lindsey Vonn, as well as four other children who are spending their first Mother's Day without her. Lindy's daughter, Laura, discusses how the whole family was affected by their mother's ALS diagnosis from the beginning, middle and end.