While staunchly supporting the right of people with ALS to make health care decisions affecting their life and death, The ALS Association believes just as strongly in the right for people to be fully informed about ALS including symptom management and comfort measures as ALS progresses.
It’s going to take all of us working together, doing whatever it takes, to make ALS a livable disease and ultimately find a cure. It’s going to take researchers, clinicians, and scientists across the globe, urgently collaborating to reach our common goal – a world without ALS.
My mom, Nina Moatz, was one of the most joyous people I have ever known. She had a beautiful smile, a wonderfully positive attitude, and a fantastically infectious laugh, with her hands clapped together, head thrown back, and a twinkle in her eye. It's my favorite memory of her.
The Food and Drug Administration on Friday approved emergency authorization of a COVID-19 vaccine developed by Moderna, the second vaccine approved by the agency to combat the coronavirus pandemic.
Does ALS cause pain? The answer is yes, although in most cases it does so indirectly. From what we know at this time, the disease process in ALS only affects the nerve cells controlling strength (motor neurons) in the brain, spinal cord, and peripheral nerves. Fortunately, these nerves don’t send pain signals back up to the brain.
Reducing the financial burdens of ALS is part of our commitment to making ALS a livable disease until we can cure it for everyone. We are working hard to mitigate the economic impacts of ALS in a variety of ways. For complex financial or insurance issues, we sometimes turn to our partnership with the Patient Advocate Foundation (PAF).
My husband Russ and I were married in 1984 and were raising our boys Kyle and Dylan in the home Russ and my father had built together. Life was good. Until ALS upended everything.
Clinical trials are the most reliable – and ultimately the fastest – way to translate promising laboratory science into new and better ways to treat and care for people living with ALS.
For people living with ALS, the enjoyment and escape video games may have once brought is far too often another thing the disease takes from them. As muscles weaken and fine motor functions decrease, handling video game controllers and keeping up with fast-paced game play can cause frustration and cause people to give up on gaming all together.