For Allison Lardner, Vice President of Field Development and Community Engagement, the ALS cause is very personal. “His diagnosis literally changed my life, my career… Everything.” He was Allison’s Grandfather, “Big Guy” as he was affectionately known.
Lorraine's husband included a provision in his living trust stating that the proceeds from the sale of their home will be given to The ALS Association and directed to their cutting-edge research program.
By developing and adapting innovative technologies, our Assistive Technology Grant recipients are helping people living with ALS maintain or improve their health, independence, and quality of life.
Since 2019, the ALS Roundtable Program has invited individuals reflecting diverse points of view, including people living with ALS, caregivers, clinicians, academic investigators, industry colleagues and government officials, for candid, facilitated discussions to find solutions to ALS-related challenges. Here you will find summaries from each of these meetings.
We all have things we like to do for fun – hobbies, sports, artistic endeavors or other leisure activities. Despite all the challenges and tasks involved in living with ALS, it’s important to keep doing the things you enjoy. Although ALS can make many leisure activities more difficult – or even seemingly impossible – there are ways you can adapt and still enjoy the things you love. Learn more.
A major benefit of providing long term telehealth care options to people with ALS is the decreased risk of exposure to other illnesses, in particular during this time of COVID19.
As a caregiver for someone living with ALS, you have a very important role. The everyday tasks you do for your loved one are often time-consuming and require a great deal of effort. If you don’t learn to recognize that certain responsibilities and expectations can take their toll on you, regardless of whether you’re doing them out of love, you may find yourself headed down the path of burnout. Learn more.
The Institute of Clinical and Economic Review, an organization commonly known as ICER, has opened a review of AMX0035 and oral edaravone to determine the cost-effectiveness of the drugs. If ICER says a new medication does not have value, payers may decide to restrict access to it.
The ALS Ice Bucket Challenge was a global phenomenon that changed the fight against ALS forever. In the summer of 2014, three young men living with ALS took the ALS Ice Bucket Challenge and inspired people around the world to dump ice water on their heads and donate to an ALS organization. Over 17 million people participated in the Challenge and raised $115 million for The ALS Association.