Impressed with ALS's work to find a cure for ALS and support patients and families, Carol Booth began making donations to the chapter. Recently, with the full support of her children, she decided to make an even bigger difference by naming The ALS Association as a beneficiary in her will.
A bill championed by The ALS Association was introduced in Congress today that would remove noninvasive ventilators from Medicare’s competitive bidding program. Reps. Morgan Griffith (R-Va.), Peter Welch (D-Vt.), Gus Bilirakis (R-Fl.), John Larson (D-Ct.), and Darren Soto (D-Fl.) have introduced H.R.4945, the Safeguarding Medicare Access to Respiratory Therapy (SMART) Act of 2019.
You do a lot of little activities every day, usually without even thinking about them: button your clothes, brush your teeth and pick up a coffee mug. These common tasks are automatic for most people, but they become more challenging when you have you’re living with ALS. You can make daily living activities easier by adjusting how you do things or making small changes to items around the house. Learn more.
What is ICER?
The Institute for Clinical and Economic Review (ICER) is a private, nonprofit organization that performs cost-effectiveness analyses of drugs. ICER focuses primarily on new-to-market or soon-to-market treatments. The goal of ICER analyses is to see if a drug’s benefit to patients aligns with its cost and its value to the health care system overall.
Discussing your charitable intentions with us can lead to a much better result than going it alone - and will assure that your gift is used just as you wish. We can give you valuable information about any of the creative giving techniques mentioned in these pages.
As ALS causes muscles in the chest to weaken, breathing can become difficult. In fact, respiratory problems have long been a leading cause of death for people living with ALS. But there are things you can do to improve respiration and manage breathing problems as they occur. Examples include special techniques and mechanical aids that can help with breathing and coughing. Learn more.
Social distancing and stay-at-home orders in response to the COVID-19 pandemic are upending many facets of daily life. In recognition of Occupational Therapy Month, we checked in on ways this critical piece of multidisciplinary care can continue during quarantine and innovative ways telehealth can be adopted by occupational therapists.
Robin has named The ALS Association as a beneficiary in her will. She has joined the ranks of a growing number of friends who have made us part of their family by including ALS in their estate plan.
Executive Director John Hedstrom of The ALS Association Massachusetts Chapter offers a testimony to the Join Committee on Health Care Financing in support of in Support of H. 201 and S. 753, “An Act Advancing Health Care Research and Decision-Making Centered on Patients and People with Disabilities”. Read his statement on behalf of the Massachusetts ALS community here.