Medicare is the national health insurance program for which all Social Security recipients who are either over 65 years of age or permanently disabled are eligible. Thanks to tireless ALS advocacy work, this incudes people living with ALS, regardless of age. People living with ALS who receive Social Security Disability Insurance (SSDI) are eligible for Medicare. There’s much to know about what is and isn’t covered. Learn more.
thinkALS is an easy-to-use and powerful diagnostic tool that can help reduce the time it takes to diagnose ALS and refer people to multidisciplinary ALS centers.
Unlike most Medicare recipients who need extensive home care and rehabilitative services, people with ALS do not improve, and the intensity of their service needs increase over time. That means standard Medicare cost control approaches don’t work well. I will discuss two examples.
Don and Edna Mills began supporting The ALS Association in the early 1990s, and Don has continued that support. Recently, when a CD matured and his bank offered a minuscule interest rate, he used the funds for a charitable gift annuity, providing him with an attractive payment rate and substantial annual income which is guaranteed for his life.
We advocate for legislative policies that will support the finding of treatments and a cure for ALS, to empower people living with ALS to live their lives to the fullest. Learn more.
The Consolidated Appropriations Act (CAA) was signed into law on December 27, 2020 and extends philanthropic benefits to donors from the 2020 Coronavirus Aid, Relief and Economic Security (CARES) Act.
As states begin easing some of the stay-at-home orders put in place in response to the COVID-19 pandemic, people who are high-risk of exposure to the coronavirus are still urged to remain safely at home and to take continued precautions to distance themselves from anyone who may have been exposed to the virus.
Being diagnosed with ALS is devastating and overwhelming. Learning to accept your diagnosis and live with the disease can be incredibly difficult. We want to support you throughout your ALS journey. From initial diagnosis to end-of-life plans, we hope the information and resources we provide will help prepare you, guide you and make it all a bit easier. Learn more.