Thanks to the efforts of The ALS Association, key members of Congress, advocates and the Department of Veterans Affairs, ALS has been listed as a disease entitled to presumptive service connection. That means a service member diagnosed with ALS is entitled to service connection and full benefits. Learn more.
ALS Focus™ surveys collect the preferences, needs, perceptions and experiences of people living with ALS and ALS caregivers in the United States, bringing their lived experiences to the forefront. You can find summaries of these results linked below.
Each outfit Bedlack wears is calculated to disarm patients who might be nervous, open a topic of conversation, or make at least one element of a medical visit enjoyable for both him and his patients.
The impact ALS has on breathing is one of the most daunting aspects of the disease. It’s something you and your family should learn about and prepare for early in your ALS journey. These videos will introduce and explain the complicated topic of breathing changes in ALS. Learn more.
A coalition of patient, clinician, and provider groups – including the ALS Association, the American Association for Respiratory Care (AARC), the National Association for Medical Direction of Respiratory Care (NAMDRC), American Association for Homecare (AAHC), and the Council for Respiratory Care (CQRC) – today commend Representatives Morgan Griffith (R-VA) and Peter Welch (D-VT) for introducing legislation to protect Medicare beneficiaries’ access to critical home ventilation therapy. The Safeguarding Medicare Access to Respiratory Therapy (SMART) Act of 2019 would delay the inclusion of ventilators from the Medicare durable medical equipment competitive bidding program for five years, and establish a technical expert panel (TEP) to update that national coverage policies for home mechanical ventilator devices so that they reflect technological advancements and peer-reviewed science.
Being a caregiver for someone living with ALS isn’t easy. Often, you're so busy supporting your loved one that your own physical or mental health takes second priority. It’s important you get the support and assistance you need so you can care for your loved one to the best of your abilities. Learn more.
Our mission is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our employees help us achieve this mission.
Paying attention to the big moments of life, while not forgetting to pay attention to the little things, is what palliative care is all about. By definition, palliative care is a whole-person approach to care that focuses on quality of life, relief from pain and symptoms, and reducing emotional distress for a person living with a serious illness or disease like ALS.
We know multidisciplinary care for people living with ALS and their families is proven to extend survival and improve quality of life. At the ALS Association, we work with the best ALS physicians and clinics across the U.S. to make sure people living with ALS have access to the best specialized care no matter where they live. Our Certified Treatment Centers of Excellence™ and Recognized Treatment Centers™ provide people with ALS compassionate care in a supportive, family-oriented atmosphere.