We talked with Dr. Marion Sommers-Spijkerman, postdoctoral fellow from the Netherlands, to learn more about her research focused on developing and evaluating a guided web-based self-compassion intervention aimed at reducing self-stigma in people living with ALS and their primary caregivers.
An ALS diagnosis is a devastating diagnosis in and of itself, but to learn your loved one has FTD as well can make it even more challenging to comprehend.
Next week at the American Academy of Neurology Meeting (AAN) in Philadelphia, Biogen will present promising results of the phase 1/2 study of its newly named investigational therapy tofersen (previously BIIB067), which is now enrolling in a phase 3 trial. Tofersen is an antisense oligonucleotide (ASO), a type of designer DNA drug, targeting SOD1.
The Senator Tomassoni Caregiver Support Program provides financial support to help cover some of the costs associated with in-home care, as well as education for personal (non-paid) and professional (paid) caregivers in Minnesota.
Proceeds from the online auction that runs through Tuesday will benefit the Peter Frates Family Foundation, which assists ALS patients and their families with the cost of home health care, according to a spokesperson for auctioneer KBK Sports.
The Respite Program provides respite care grants for ALS caregivers. Respite care is the provision of short-term, temporary relief to those who are caring for family members with ALS and who might otherwise require permanent placement in a facility outside the home. The grant ranges between $1,000 to $3,000 and is available twice a year.
The Respite Program provides respite care grants for ALS caregivers. Respite care is the provision of short-term, temporary relief to those who are caring for family members with ALS and who might otherwise require permanent placement in a facility outside the home. The grant ranges between $1,000 to $3,000 and is available twice a year.
Our grant program provides direct support intended to make life a little bit easier for patients and their families. It is a financial grant that can be used for respite care, home health services, and/or accessible transportation.