Since 2019, Kevin Heller -- a West Point graduate and U.S. Army veteran who was diagnosed with ALS at the age of 58 -- and his team #GiveEmHeller, put their hearts and souls into the nation’s top-grossing ALS fundraiser, the Napa Valley Ride to Defeat ALS and Walk.
This is a grant program designed to offset increasing out-of-pocket disease-related costs through expense reimbursement. Our Assistance Program reimburses for medical, transportation and home modification costs, whereas our Caregiver Respite Program reimburses for in-home care costs.
Following our We Can’t Wait Action meeting with the FDA, we sent a letter to the agency asking it to reaffirm its commitment to the 2019 ALS Guidance and provide us with a detailed report showing how it has implemented the guidance. This week, the ALS Association received a response from Dr. Patrizia Cavazzoni, Director of the Center for Drug Evaluation and Research.
The Maureen Slattery Miller Care Fund is designed to meet the needs of people living with ALS who have a demonstrated financial need. The Fund provides monetary grants for medical, communication and assistive technology equipment; home health care; vehicle modifications; home modifications; transportation; financial assistance for medical and non-medical bills; and other financial necessities related to the cost of the disease.
The ALS Disability Insurance Access Act went into law Tuesday, removing the 5-month delay for people with ALS to access the Social Security Disability benefits. This marks the culmination of a multi-year fight by ALS advocates across the country.
ALS Focus™ results are shared through a variety of conference posters and presentations, government agency reports, peer-reviewed journals and other publications. You can view or download published materials by clicking on the links below.