Just as ALS did not stop for COVID-19, the Walk to Defeat ALS® did not stop. The simple fact is, we can’t wait for COVID-19 to end before we walk. Instead, chapters across the country have been coming up with innovative ways to move this signature event into virtual spaces, creating new opportunities for our communities to come together in unity to keep building a world without ALS.
Team Challenge ALS® is the ALS Association's comprehensive endurance program to help fight ALS. Combine your passion and commitment to finding a cure for ALS while achieving physical challenges by participating in athletic events, such as marathons, triathlons, cycling events, swimming events, winter sports, obstacle course races and other endurance activities.
After a lifetime of participating in and leading two-a-day practice sessions, as a running back at the University of Alabama and the NFL, and later becoming a strength and conditioning coach in the NFL, Kerry Goode knew something was wrong when he couldn’t pick up a box.
Bipartisan Legislation Eliminates Five-Month Waiting Period for SSDI Benefits for People Diagnosed with ALS
The ALS Disability Insurance Access Act was reintroduced in the 116th Congress this week as S.578 in the Senate by Senator Sheldon Whitehouse (D-RI) and Senator Tom Cotton (R-AR). Representatives Seth Moulton (D-MA) and Peter King (R-NY) introduced the companion bill in the House as H.R.1407.
We recently announced that we’re providing new funding to allow GNS Healthcare to use artificial intelligence (AI) to create a comprehensive disease model to advance research into ALS. GNS Healthcare will use its powerful machine learning platform, called REFS, in conjunction with the rich Answer ALS patient datasets, which are accessible to clinicians and scientists throughout the ALS research community. The project will be led by Dr. Iya Khalil, chief commercial officer and co-founder of GNS Healthcare.
My name’s Aaron, but my friends call me “Bankz.” I’m a 39-year-old husband to Abbie and father to seven-month-old Lincoln. It was a real shock when I received my ALS diagnosis less than six months ago. But now that I’ve had some time to let things sink in, it’s time to make some noise.
In January 2014, Terry Fiset, a retired attorney turned theater director, was having trouble speaking and wanted help. She met Andrea Caban, a voice, speech, and accent specialist and the head of Voice and Speech in the Department of Theatre Arts at California State University, Long Beach (CSULB).
Meet Howard B. Levy, a highly accomplished certified public accountant with a national reputation and a long history of involvement with and support for The ALS Association. He learned of the Association during the mid-1980s during the last year of the life of his dear father, Jack Levy, who had ALS.
The ALS Association is proud to announce three large research organizations -- Project MinE USA, Answer ALS and the New York Genome Center (NYGC) -- will be working collaboratively toward their mission for treatments and a cure for ALS.
We offer a grant assistance program for home modifications, speech generating devices, power wheelchairs, or respite/home care that meets the needs of those living with ALS. This program is subject to the availability of funds.