The ALS Association’s Seed Grants support generation of preliminary data that will ultimately serve as the basis for larger grants that fund impactful research in ALS.
We discussed the incredible strides being made in the science of preventing ALS with Dr. Stephen Goutman, Director of the Pranger ALS Clinic and Associate Professor of Neurology at the University of Michigan.
Our Dad, Bill Hopkins, was diagnosed with ALS on November 22, 2011. His symptoms began only a few months prior when we noticed his voice sounded slurred at the end of the day. He was tested for a multitude of diseases and conditions, from a brain tumor to stroke and everything in between.
Gimble, Guerin, Reiley & Brown, LLC came out in force for their partner, Jeff Kaufman, when he was diagnosed with ALS. GRBG, the "original sponsors" helped elevate us to who we are today.
Every May, The ALS Association joins the ALS community in celebrating ALS Awareness Month, a time to bring attention and understanding to this disease. As part of this year’s Awareness Month, we are happy to be launching the ALS Association Blog!
We talked with Dr. Stephen Johnson, postdoctoral fellow from Massachusetts General Hospital, to learn more about his research focused on ways to accelerate discovery of efficacious therapeutics through identification and validation of novel outcome measures using readily available technology.
In very powerful testimony, members of the ALS community asked members of Congress to ensure the FDA acts with greater speed and regulatory flexibility during a hearing before the House Energy and Commerce Health Subcommittee.
Today, in response to the New England Journal of Medicine publication of encouraging clinical trial results showing that Amylyx Pharmaceuticals’ AMX0035 brought statistically significant benefit to people living with ALS, The ALS Association and I AM ALS immediately called on the drug company and the FDA to make the treatment widely available as soon as possible.
On July 15, 2014, a small gesture of support by professional golfer Chris Kennedy on behalf of a family member living with ALS, went unnoticed by all but a few of his social media followers. Calling out his cousin Jeanette Senerchia of Pelham, NY, in support of her husband Anthony, Kennedy dumped a bucket of ice water on his head and challenged his network to either follow suit or make a donation to fight ALS. It was not until months later that the significance of his Facebook post would be credited as the start of the largest movement in medical history: The ALS Ice Bucket Challenge.