New long-term analysis published in the Journal of Neurology, Neurosurgery & Psychiatry showed AMX0035 was effective at reducing a variety of harms associated with ALS during the previously published Phase 2 Centaur trial.
The work to make ALS a livable disease and continuing to search for a cure rests in no small part on a robust drug discovery pipeline. That is why increasing interest in ALS research is critical.
Diagnosed with ALS last spring, Heidi Tarr Henson, Ed.D., shares thoughts about her personal journey living with the disease and what real awareness of ALS means to her.
"Preparing for a Hurricane – for ALS Family Caregivers" is the second "Caring for the Caregiver" webinar of our 2022 series!*
Join us on Thursday, May 26, 2022 from 2:00-3:30 PM ET for this discussion.
Steven Lerner, FPEM, CEM, NEMEA, senior planner for the Seminole County Office of Emergency Management, will be discussing hurricane preparedness for families affected by ALS in Florida and answering questions.
*The "Caring for the Caregiver" Webinar Series is sponsored by Mitsubishi Tanabe Pharma America.
Jackie Heltz is a producer, filmmaker, and writer with a passion for issue-driven documentaries. She is also a dedicated volunteer in the fight against ALS.
I have been very fortunate and extremely unlucky in my life. I have bulbar-onset ALS. Of course, living with this “new normal” is challenging. But my previous experience with grief has informed my attitude now as well, and I try to live each day as best I can, in the most positive way possible.
In celebration of mothers everywhere today, we are honored to share the story of celebrity hairdresser and beauty expert, Ken Paves, and his amazing story about life, love and caring for his beautiful mother, Helen, who recently lost her battle with ALS.