Caregivers are the unsung heroes of ALS. Often, they're so busy supporting their loved one, their own physical or mental health takes a back seat. That’s why ensuring caregivers in the ALS community receive the support and assistance they need is critical.
The ALS Association told the Secretary of the Department of Transportation (DOT) about the horrible experiences of ALS advocates when flying. This is part of our effort to make air travel safe and accessible for people living with ALS.
Eleven individuals who joined together for the 2024 Team Challenge ALS Boston Marathon shows that while each runner completes a marathon on their own, the results of the group can sometimes be so much greater, in so many ways. Overall, the team raised over $190,000 for the fight against ALS.
The surge in awareness we saw from the Ice Bucket Challenge helped us to make great strides in ALS advocacy. From new policies to help with care and support for families impacted by the disease, to tremendous increases in governmental funding for ALS research, we’ve seen great progress. But we still have work to do and need your help.
Paul Seaver, the manager of community engagement and events for the ALS Association who oversees major events in the Boston area, has a personal connection to ALS—having lost his father to the disease in 2013. He shares his story on how raising awareness and funds for ALS became his priority, even before taking on the role professionally.