ALS Accelerated Therapeutics (ALS ACT)

ALS ACT is a novel academic-foundation-industry partnership with ALS Finding a Cure®, initiated with researchers from General Electric (GE) Healthcare and four academic Northeast ALS Consortium (NEALS) sites, to accelerate the development of new treatments for people living with ALS.  

ALS Association
Daily Activities Made Easier for People with ALS
This manual discusses what aspects of that task people with ALS may have difficulty with and provides possible ways to make the challenges smaller or to compensate by using adaptive equipment.
Guide / Manual
ALS Association
FYI: Advance Directives
An advance directive is a legal document used to instruct others about your health care wishes. It acts as a guide for your loved ones and health care providers to make health care and treatment-related decisions on your behalf, should you become unable to convey them due to illness or incapacity.
Factsheet
ALS Association
FYI: Minimizing Fatigue
Be recognizing the signs of fatigue, knowing which factors worsen symptoms, and learning how to conserve energy, persons with ALS can greatly improve their quality of living.
Factsheet
ALS Association
FYI: Reasons for Living with ALS
While staunchly supporting the right of people with ALS to make health care decisions affecting their life and death, The ALS Association believes just as strongly in the right for people to be fully informed about ALS including symptom management and comfort measures as ALS progresses.
Factsheet
ALS Association
FYI: Second Opinion FAQs
The only way a person can begin to accept an ALS diagnosis is to be certain that the diagnosis is correct.
Factsheet
ALS Association
FYI: Bill of Rights for People Living With ALS
The ALS Association prepared the Patient Bill of Rights to inform people living with ALS about their rights related to health care and health plan insurance coverage.
Factsheet