An ALS diagnosis is a devastating diagnosis in and of itself, but to learn your loved one has FTD as well can make it even more challenging to comprehend.
“How should I live my life?" Sadly, I don't have an answer to this question, only you can answer this question for your life, but I do have five points which may help you.
Thanks to the tireless efforts of ALS advocates across the country, the House included many of our aggressive requests for new and increased investments in research to find treatments and a cure, slow symptom progression, reduce the number of new cases, and increase the length and quality of life for every American living with ALS.
The ALS Association and the U.S. Department of Veterans Affairs (VA) have entered into a partnership to help improve the lives of Veterans living with ALS by increasing the number of Veterans Health Administration (VHA) clinics that are designated as Certified Treatment Centers of Excellence and Recognized Treatment Centers.
Across the country, teams of health care professionals specially trained to address the needs of people living with ALS are doing whatever it takes to provide the specialized care and support their patients require.
In very powerful testimony, members of the ALS community asked members of Congress to ensure the FDA acts with greater speed and regulatory flexibility during a hearing before the House Energy and Commerce Health Subcommittee.
As part of this year’s National Advocacy Conference, Dr. Bryan Traynor, senior investigator and chief of neuromuscular diseases at the NIH’s National Institute on Aging presented a case study to the ALS community to help better understand what we know today and what we are working toward for the future relating to genetics and prevention. ALS prevention has not only been a priority for Traynor, but for the ALS community at large.
This year the ALABAMA Statewide Walk to Defeat ALS will be Virtual or a Walk where you are event, but you will register your team for the area closest to where you live:
The Reichelt family is hosting this event in honor of Eddie to benefit the ALS Association Wisconsin Chapter; with deep appreciation for the help provided to the Reichelt family during Eddie's illness.
Chris & Sue's Restaurant will generously donate 10% of all sales on this day to the ALS Association Wisconsin Chapter. View Classic Cars on the restaurant grounds the day of the event. If you're interested in showing your car, please contact Chris at 920-207-1961 - space is limited.
