The ALS Association announced today that it has awarded a $620,000 grant to the Packard Center for ALS Research at Johns Hopkins to support the Answer ALS Data Portal. Launched in January this year, the Data Portal provides open access to the world’s most comprehensive collection of ALS data.
We talked with Dr. Janani Parameswaran, postdoctoral fellow from Dr. Jie Jiang’s lab at Emory University in Atlanta, to learn more about her and her ALS research focused on unraveling the underlying disease mechanism.
Dr. Heidi Tarr Henson, recently diagnosed with ALS, reflects on in-the-moment advocacy, teachable moments and the power of setting boundaries with ourselves and others.
Holiday celebrations are times of fun, fellowship and of course, food. And, while the holidays are meant to be enjoyed, they can also be a tremendous stressor for people living with ALS and their families. Learn tips to help enjoy the holidays and delicious easy chew, easy swallow recipes the whole family will enjoy.
