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 Upcoming Chapter Events Jan 2018 v2
JANUARY SUPPORT GROUP DATES

MANHATTAN, NY
Tuesday, January 16th, 2018- 6:00 to 8:00 pm 
Mt. Sinai Downtown at Union Square
Phillips Ambulatory Care Center
10 Union Square East (b/w 14th & 15th Sts.)
New York, NY 10003
Neurology Dept., 5th Floor Conf. Room
Contact: Jody Wiesel, PhD, (917) 699-9751
Topic: The Importance of Nutrition in ALS
Speaker: Ilene Kapelner, Registered Dietitian
Next month's support group meets: Feb. 20th, 2018

QUEENS, NY
Wednesday, January 17th, 2018- 6:00 to 8:00 pm
The SilverCrest Center for Nursing and Rehabilitation
144-45 87th Avenue - 1st Floor Dining Room/Lounge, Briarwood, NY 11435
Contacts: Michelle McKenzie, LMSW,(718) 644-1750
Tracy Sandy-Ali, MPH, LPN, CCRC, (631) 697-6314 
Topic: Open Discussion
Next month's support group meets: Feb. 21st, 2018

JAMES J. PETERS BRONX VA MEDICAL CENTER
Wednesday, January 10th, 2018 - 1:00 to 3:00 pm
130 West Kingsbridge Road - 1E Dayroom SCI Unit, Bronx, NY 10468
Contacts: Michelle McKenzie, LMSW
(718) 644-1750

Ernest Acheampong, RN (718) 584-9000 ext. 5405
Topic: Open Discussion
Next month's support group meets: Feb. 14th, 2018 

NASSAU COUNTY, NY
Sunday, January 7th, 2018 - 2:00 to 4:00 pm
Northwell Health at Plainview Hospital (Downstairs)
888 Old Country Road
Plainview, NY 11803
Contact: Cindy Keyser-Posner, LMSW 
(631) 416-2767
Carol Bishop, RN, (631) 219-0947
Topic: Open Discussion 
Next month's support group meets: Feb. 4th, 2018

SUFFOLK COUNTY, NY
Tuesday, January 2nd, 2018 - 6:00 to 8:00 pm
Stony Brook Neurology Offices
181 North Belle Mead Road Suite 5
East Setauket, NY 11733
Theresa Imperato, RN, (516) 946-5467
Contact: Cindy Keyser-Posner, LMSW
(631) 416-2767
Topic: Open Discussion
Next month's support group meets: Feb. 6th, 2018

WESTCHESTER, NY/WHITE PLAINS
Tuesday, January 9th, 2018- 6:00 to 8:00 pm
Burke Rehabilitation Center
785 Mamaroneck Avenue, Building 7
White Plains, NY 10601
Contacts: Helen Mayer, RN (845) 520-0952
Nancy Brenner, LCSW, (914) 406-3513
Topic: Open Discussion
Next month’s support group meets: Feb. 9th, 2018

LOWER HUDSON VALLEY, NY
Tuesday, January 2nd, 2018 - 6:00 to 8:00 pm
Ambulatory Surgery Center Bldg. C, 3rd Fl.
200 Westage Business Center, Fishkill, NY 12524
Contacts: Helen Mayer, RN (845) 520-0952
Nancy Brenner, LCSW, (914) 406-3513
Topic: Open Discussion
Next month’s support group meets: Feb. 6th, 2018

NORTHERN NJ/SADDLE BROOK
Thursday, January 4th, 2018 - 7:00 to 9:00 pm
Kessler Institute for Rehabilitation

300 Market Street, Saddle Brook, NJ 07663
Contacts: Debbie Schlossberg, LMSW
(732) 710-8832
Mary Ann Mertz, RN, (908) 552-5573
Topic: Open Discussion
Next month’s support group meets: Feb. 1th, 2018

CENTRAL NJ
Saturday, January 20th, 2018 - 1:30 to 3:30 pm
Robert Wood Johnson Fitness & Wellness Center
100 Kirkpatrick Street- Community Education Room, New Brunswick, NJ 08901, Level 2
Contacts: Debbie Schlossberg, LMSW
(732) 710-8832
Mary Ann Mertz, RN, (908) 552-5573
Topic: Open Discussion
Next month’s support group meets: Feb. 17th, 2018

TELEPHONE SUPPORT GROUPS

** Day Change - Beginning Jan. 8th, 2018 ** Patient group: Every Monday from 2:30 to 3:30pm

Caregivers group: Every Wednesday from 4:00 to 5:00 pm

Contact: Susan Zimmerman, LCSW (212) 720-3050

Topics include: Open discussions

Here's how you can make a difference.

Create a world without ALS by getting involved with The ALS Association Greater New York Chapter. Whether joining the Walk to Defeat ALS®, volunteering your time to support the ALS community, or sharing your story to honor our loved ones and spread awareness, there are plenty of ways to join the fight! Every action you take to Challenge ALS furthers our mission and accelerates finding a treatment and a cure for this devastating disease. For more information contact Kristen Cocoman at (212) 720-3048 or email cocoman@als-ny.org.

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Join our Young Professionals Group

The YPG generates awareness of the fight against ALS (Lou Gehrig’s Disease) by developing fun, sophisticated and meaningful opportunities for their peers to get involved in the cause. To find out about the next general meeting of the Young Professionals Group please email alsypg@gmail.com. For information about the ALS Association's Young Professionals Group, contact Jake Carlin at (212) 720-3054 or jcarlin@als-ny.org. Visit the YPG website here.

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Matching Gifts: The Inside Scoop

Many companies allow their employees to direct their charitable giving programs through matching gifts. When an employee notifies the company that he/she has made a charitable donation, the company will make a gift of the same amount, and in some cases double the amount, to the same charitable organization. Matching Gift Programs are a wonderful way for employees to make their charitable dollars stretch farther at no cost to themselves.

If your company is eligible, request a matching gift form from your employer, and send it completed and signed with your gift. We will do the rest. The impact of your gift to The ALS Association Greater New York Chapter may be doubled or possibly tripled!

For more information, call Ruth Wolcson, Gift Coordinator, (212) 720-3041 or wolcson@als-ny.org.

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Sign up For The National ALS Registry

The National ALS Registry is an important tool researchers can use in the fight against ALS. People living with Lou Gehrig’s Disease may self enroll in the Registry via a secure online web portal at the Centers for Disease Control and Prevention: www.cdc.gov/als.

For more about the ALS Registry, contact Christine Dunn in the Chapter office at (212) 720-3044 or dunn@als-ny.org. Chris can also help you with your enrollment.


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In Need of Help?

If you are a patient, caregiver, or family member and need a little help to lighten your work load please contact us and we will request a volunteer for you. Volunteers can help in many ways - from walking your dog, shopping, or just reading a good book to you. Contact Christine Dunn at (212) 720- 3044 or dunn@als-ny.org.

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Advocate

The Greater New York Chapter continues to be on the front lines of policy debates that shape the lives of people with ALS. From healthcare to research to veterans affairs, The ALS Association Greater New York Chapter is at the table on the federal, state and local levels of government making the concerns of ALS patients and their families and caregivers known.

If you're interested in joining our advocacy efforts, please contact Regina Ackley, Chief Operating Officer, at (212) 720-3047 or ackley@als-ny.org.

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Volunteer

We need volunteers to help our patients and their families. Some PALS may need help with daily tasks; families and caregivers of our PALS may need help as well to lighten their work load a bit. There are so many ways to help - from watching a movie together or reading, or even helping with some household chores.

If you are looking for a way to get involved please click here to learn how you can help people with ALS. You can also call Christine Dunn at (212) 720-3044 or email: dunn@als-ny.org.

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Donate

Make a generous donation to find a cure, fund life saving research or to provide much needed equipment and services. To make a donation online, please click here or contact Regina Ackley, Chief Operating Officer, at (212) 720-3047 or ackley@als-ny.org. To mail a donation, please address to: The ALS Association Greater New York Chapter, 42 Broadway, Suite 1724, New York, NY 10004. Thank you for your generous support.

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Tribute

Our online Tribute Wall offers individuals and families a way to honor and remember those whose lives have been affected by ALS. Through this online collection of photos, messages, and notes we hope to share the stories of the hundreds of people in our region with Lou Gehrig's disease. If you would like to share a message and a photo, please email your submission of the name of the person and a brief paragraph of no more 200 characters along with a photograph to tribute@als-ny.org.

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Connect

Find out instantly about the latest in ALS research, advocacy efforts, special events, and patient services. Additionally, if you or a loved one have a blog about living with ALS, please let us know.  Stay connected.

You can find our chapter on social media: Facebook | Twitter | ALS Blog | YouTube | LinkedIn.

Find our Walk to Defeat ALS on social media too: Walk Facebook Page | Walk Twitter.

Learn more:  Research | Blog | How to Help 

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